Chronic pain conditions are invisible and silent conditions that can have devastating effects on the lives of those who suffer from them.
Now medically recognised across the board, it is becoming easier to identify the symptoms of a chronic pain condition and understand the impact that this can have on an individual’s life.
A crucial development that has come around with the newly widespread awareness of chronic pain disorders are a wide range of support groups for a variety of different chronic pain conditions.
The many symptoms of chronic pain can severely impact all areas of an individual’s life, from relationships with their families and friends to their physical and emotional wellbeing.
Many people find it hard to talk to their loved ones about how they are feeling and how they are being affected, which can sadly lead to feelings of isolation.
We have provided below a list of groups that you may find helpful along with an explanation of what they do and a link to follow if you are interested in joining.
Foggys is a support group based in Swindon, Wiltshire for ‘Invisible Illnesses’. They provide support and help raise awareness for conditions such as Chronic Fatigue Syndrome, Fibromyalgia, IBS and Arthritic/Rheumatiod Conditions amongst many other chronic pain conditions.
Members of Foggys benefit from free swim sessions at Thamesdown Hydrotherapy Pool alongside subsidised meals regularly arranged by Foggys with the aim of bringing like minded people together.
They hold support meetings on the first Wednesday of every month from 12pm - 2pm at Linden Community Centre in Swindon.
FMA UK is a charity supporting and raising awareness for Fibromyalgia. FMA UK was founded in 2015 and regularly hosts fundraising and awareness events around the country, even attending Parliament to raise awareness and represent the condition.
FMA UK provides a telephone support service and online support forum for sufferers of Fibromyalgia and friends and family of those who suffer from this. There are also a host of nationwide support groups to attend.
A support group for carers and sufferers of ME and Fibromyalgia based in Swindon, Wiltshire. They host monthly meetings on every 3rd Wednesday of the month between 7pm and 9pm alongside monthly coffee mornings.
Burning nights is a support charity for those suffering from Complex Regional Pain Syndrome. It aims to raise awareness of the condition and provide support for those suffering. They run an online forum for people to share experiences and answer questions.
They have also created a downloadable pain diary for CRPS sufferers to log their symptoms and flare ups in order to aid the diagnosis process and help with managing pain medication.
You can download the diary here - https://www.burningnightscrps.org/pain-diary-template/
A charity supporting and dedicated to fundraising and raising awareness for Myalgic Encephalomyelitis. They provide online peer support forums for those affected by ME as well as parents and carers.
A way with pain is a charity that supports those affected by chronic pain. Sufferers have shared their stories online to support others and raise awareness and they also run a Facebook group aimed at providing support.
Pain UK is a charity that supports a collection of individual pain charities. They provide useful resources such as helpful FAQs on a variety of chronic pain disorders as well as providing links and information on a host of other pain charities.
Action on Pain is a charity that provides advice and support for those living with chronic pain. They run a ‘Painline’ which is a telephone advice service aimed a providing advice for sufferers of chronic pain disorders.
The British Pain Society is aimed at medical professionals working with chronic pain disorders funding research into better understanding and treating them. There are also some helpful links and information on chronic pain disorders.
A website that provides useful pain management tips to those suffering from chronic pain amongst other useful advice and courses.
A charity involved in funding research into the causes and treatment of chronic pain. They also provide a variety of helpful leaflets on different chronic pain disorders.
Pain Support is a website aimed at helping those suffering with chronic pain to move forward with their lives by providing useful and interesting resources to aid in this. They run an online forum with support and advice for members and an opportunity for sufferers to share questions and stories.
Dr Aisling Coy is a Consultant in Rheumatology and Rehabilitation medicine.
She concentrates her time on diagnosing and treating the huge variety of rheumatological and musculoskeletal complaints that she sees, using her expertise in rehabilitation to optimise management and outcomes.
Dr Coy sees a huge variety of patients with many different rheumatological and musculoskeletal complaints, including inflammatory arthritis, such as rheumatoid arthritis and psoriatic arthritis, spondyloarthritis, osteoarthritis, osteoporosis, connective tissue diseases, gout, fibromyalgia, and other more common musculoskeletal complaints such as painful shoulders, backs, necks and knees.